|
6
|
Cardiomyopathy Information & Discussion Forums / Dilated Cardiomyopathy / Re: DCM, CHF & Diabetes - Questions
|
on: Today at 02:18:55 AM
|
|
Started by Janna | Last post by Chrissy
|
Oh I am so excited for you John. I am mind boggled at the moment about how successful this has been for me. Good luck and enjoy your juicing, we will have to exchange our own recipies as we progress. We don't seem to have much Kale over here (Australia), I have never heard of it actually. I have put normal cabbage in and will try brocolli instead. Dr Cabot actually goes for colour, carrots, beetroot, etc. and also uses celery which is a natural duiretic. Interesting web site, thank you. I am actually starting to feel much better and have got more energy. Would you believe that I did a spring clean of my home yesterday, now I have to invite everyone around for coffee so that they can see what the house looks like clean and tidy. lol Here is a link to my new guru's web page.
http://www.liverdoctor.com/index.php?page=liver-diet
|
|
|
7
|
Cardiomyopathy Information & Discussion Forums / Hypertrophic Cardiomyopathy / Re: New and have some questions
|
on: September 05, 2010, 11:34:09 pm
|
|
Started by Mom2four | Last post by ChrisB
|
Hi Mom2four,
Welcome to the forum.
I was misdiagnosed with Athma, and Athletes Heart for the 10 years before it was found to be HCM. The best way I'd think to finally get diagnosed is to find a good Cardiologist - one that knows their stuff.
You said "My TTT was fine with my bp/hr not fluctuating until they gave me nitro - then it tanked and I had no palpable pulse or bp. (which I'm told is a classic sign of HCM?)". I don't know about this, I've not heard of many people with HCM having tilt table tests, someone else may have a comment about this?
Hopefully you can get to the bottom of all this soon!
Chris.
|
|
|
8
|
Cardiomyopathy Information & Discussion Forums / Hypertrophic Cardiomyopathy / Re: HOT FEET
|
on: September 05, 2010, 11:27:11 pm
|
|
Started by FIREFLY99 | Last post by ChrisB
|
Hi Firefly99,
Welcome to the forum.
I'm sorry I don't suffer from hot feet.
Having HCM doesn't automatically class you as disabled as most people with HCM have a somewhat active and full life. However I have no doubt that some with HCM have very disabling symptoms and are unable to work. There may be someone on here that's gone through the process of filling out social services paperwork to say about being too ill to work?
I'm married with 3 kids under 6 and find it tough as I have a lot of chest pain and find it hard to be active at all - not what i'd want with 3 small children. I know what you mean about life being tough sometimes.
If you can make it to the CMA day in London on the 25th then that would be a great way get some more advice, it may also be best to talk these issues through with your cardiologist. Some other people should be around to post soon.
Welcome again,
Chris.
|
|
|
9
|
Cardiomyopathy Information & Discussion Forums / Dilated Cardiomyopathy / Re: DCM, CHF & Diabetes - Questions
|
on: September 05, 2010, 08:05:30 pm
|
|
Started by Janna | Last post by DenverJohn
|
|
Hi Jen, yes I put 2 raw beetroots in my vegie juice. And yes it does add a special flavour. I go more savoury, but I have fresh ginger root for next weeks juice, so will put some in as well. I may actually add beetroot to my fruit juice this week, I put in apples, oranges, strawberries and pineapple. I just love the way we can do this ourselves and not use any more meds. I am still taking all the meds prescribed, but think I may be lessening the load on my liver/kidney. I really do feel better for all this and do not feel I am denying myself anything. The diet has actually stopped my cravings for sweet stuff, I always have a lolly jar in the house, and I havn't even been tempted in the last week. It was hard the first week, but now I obviously have evened out and they don't even appeal to me anymore.
You are so right about the juicing, Chrissy! It's amazing how quickly I can forget something that really worked for me. I got a Vitamix last year, and for about six weeks I juiced everything. I didn't lose weight (by the way, Jen, I'm a diabetic type II as well), but I did notice an uptick in my energy level on some days. I loved kale with everything! I even wrote to Victoria Boutenko. She and her family have had some success with juicing. When I found out she is still very heavy, subconsiously I made the connection that the program wouldn't work for weight loss. Probably just my own mind talk. Anyway, here's a link to some smoothie recipies:
http://www.rawfamily.com/recipes
You've inspired me to pull out my juicer again...John
|
|
|
10
|
Cardiomyopathy Information & Discussion Forums / Dilated Cardiomyopathy / mitral valve regurg/nosebleeds
|
on: September 05, 2010, 07:16:47 pm
|
|
Started by Willow | Last post by Willow
|
Hi all
theo had viral myocarditis as a newborn and spent 9 months in hospital before being allowed home. he has had multiple complications, including liver and kidney failure requiring haemodialysis
Just recently he began having nosebleeds. after a few trips to and from gp he developed a cough/cold, or so we thought. shortly after an admission to the local paed unit he had a cardiac review which showed his cough was actually pulmonary oedema and his mitral valve has started leaking significantly (was previously only mild) and as a result his atrial pressure has risen.
His statistics are;
fractional shortening 21%
ejection fraction 43%
'declaration of pressure on the mitral valve is 530mmHg/sec (normal >1200)
there is a statistic of 20-22mmHg indicating high LA pressures
Theo has a stent septostomy for reduction of LA pressure, the pressure gradient has risen from <10mmHg and is now 21mmHg...
he has recently been decannulated ; he had a tracheostomy for ventilation purposes, which has taken us 2 years to wean him from; it seems very likely that the cpap had been supporting his heart function and now it has gone we are seeing the real picture.
its all very worrying - we've not been told anything about the reason for his nosebleeds but he also has daily aspirin. im wondering of his hypertension is the cause and if so, what needs to be done?
|
|
Return to the board index.
|
