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Topic: Jimmyboy Trust (Read 2459 times)
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loublou11
Full Member
Posts: 131
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Hi all,
James' parents, bandmates and I are keen on setting up some sort of website for donations and fundraising information.
We are also keen to find out from you all where you feel the money would be best spent. We have decided that the CMA is where James would want us to spend the money we raise but are keen to find out if there is any particular project you all feel would be appropriate. We have had a few ideas and are talking to Robert Hall about these, but we do want your input as James was so loved here!
Also - please see the info about James' memorial CD!!
Thank you for all of your support!
xxx
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loublou11
Full Member
Posts: 131
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Hi guys! So far we have raised a total of £4,073.00 for the Jimmyboy Trust!!
xxx
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loublou11
Full Member
Posts: 131
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Hi guys,
We are trying to organise a charity gig in London with some bands that James gigged with and ones he loved. I am having trouble finding a suitable (i.e. cheap) venue that is big enough. We need a capacity of about 500, any ideas?
xxx
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loublou11
Full Member
Posts: 131
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A quick update...
We have so far raised a massive £8722!! Thank you to everyone for their support and donations.
We have 4 people running the London Marathon this year for the CMA through The Jimmyboy Trust which is also fantastic.
On Saturday 24th April we will be holding an Auction with some fantastic prizes (see the latest News Bulletin for details or send me an pm) at Denbies Vineyard, Dorking, Surrey.
I am so grateful for everyone's help and support and thrilled to think that we can give something back to the CMA after all you have given us and all you gave James.
Love to all,
x
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loublou11
Full Member
Posts: 131
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Just to let you all know that the auction was a huge success and we raised over £14,500!!!
Louise
x
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Trollydolly
Hero Member
Posts: 4330
has 24 year old daughter with DCM and CF, EF 20%
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This is fantastic Louise, James would be so proud of you.
Love,
Kay
xxxx
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LorraineB
Hero Member
Posts: 694
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Hi Louise
You and Jame's family are a fantastic inspiration to Jame's legacy and he is so lucky to have such wonderful family who cared and loved him.
I was thinking about what we could all remember James by and I think a childrens site/blog called the Jimmy Boy's (?) would be something that we could carry on his memories for years.
Since joining the CMA forum I have learnt so much about my disease even more than the medical staff could tell me. But I remember Jimmy showing sympathy for his fellow DCM friends and I commented that some of us are the lucky ones because we have only had Cardiomyopathy for a few years and yet he has had his as a small boy and has never really known probably a normal life. Being Jimmy Boy he replied in his usual unselfish manner.
I look on the site lots of times and see teenagers like Gemma Jane struggling and although we all try and help her, I think having experience from younger people would help her. My dear friend Tia Louise whose Mum Ellie also like me warmed to James so much has a wonderful blog called tia@tiasadventure.com it is colourful and so interesting and I think something colourful and interesting would help the younger generation. They live in Spain so like the English forum you would get children and parents from all over the world. It is something Ellie and I have talked about but finances stop us going forward. From Babies and helping their parents and tots to teens. There parents could also get involved too because I feel that the parents of a child with Cardiomyopathy must be so worrying. As James got older he was able to be independent and go on the forum and learn things for himself, making new friends and the most valuable gift he gave us all was such an understanding about our disease and a wonderful friendship to us all.
When I go to my doctors there is no leaflets about the CMA and although I have mentioned it to them we are just numbers. But I do think people take a different light on children and I think we could benefit from a children/parents site and knowing Jimmy Boys story would give them all hope that they can carry on life right up to an Adult. It would be such an emotional site but the knowledge and understanding to others would be priceless. Perhaps the British Heart Foundation could help and it would keep James memories lasting forever.
I no Gemma Jane, Tia, Lucas and many other children whose parents who commented on this site would benefit. The ignorance and the knowledge of our disease is still there and I think starting from childhood is the best way of making people aware.
I would be willing to help and I no Tias mum would also help as she is very supportive of Cardiomyopathy. People like Gemma Jane who is struggling would benefit because we all try and help but having Cardiomyopathy as a child must be so different. We can only reassure her but having children/teens in the same position like us as adults makes you accept our disease better.
Hope it has given you food for thought, but if not I hope you success in everything you do in James memory, he was one of the best and everyone on the Forum knew of him and liked him what a brilliant role model he would be to all the younger generation. I no our dear Steve has had DCM for a long while and I no Steve would of welcomed such a site and also in the future .
Hope you dont mind my thoughts and sorry for gabbling on its because I struggle so much god knows how parents and children cope.
Once again well done for the other night.
Bless Your Heart
Lorraine B
Chatterbox x x
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« Last Edit: May 02, 2010, 05:26:49 pm by LorraineB »
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