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Topic: i`m too late so sad (Read 7358 times)
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tracey ann
Newbie
Posts: 11
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hi well ben my son had a scan , that seems ok for now, blood presure still low , he had a 24 hour heart machine on, which detected he has a very high heart rate, that why he get breathless and dizzy, don`t no if this mean the start of hcm , or not , but he has to go back in july 2010 for another scan, he still gets palpatations, doctors not given him anything at all, hospital in this area are rubish, i think if they had looked after my hubby better he would still be here, still greiveing after 5 months, and it will be his 45th birthday on the 27th,, so sad xx
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RIP MY HUSBAND ANDREW STEELE
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Matt Erlanger
Hero Member
Posts: 2043
I've Got Wind.
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What can I say?
Five months is no time at all in terms of grief, but it's an age when you're worried about someone.
Is there any way you can get Ben referred to another clinic (The Heart Hospital, for example)?
It might mean a lot of travelling, but could be worth it for greater peace of mind.
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Matt, Stratford-upon-Avon DoB Oct '63 HCM; ICD Oct '04; Verapamil Tenor Sax (improving) Amateur Dramatics www.kads.org.uk (show-off) Tai Chi (lapsed beginner) |
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kahikei
Full Member
Posts: 154
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I've only been on this forum for the past week or so. I came across your posts today .You've had so much sorrow to deal with. 5 months is nothing when it come to grieve and on top of that the uncertainty with your son. I don't think any of us have the solutions, we'll just be here to listen. Anger, depression, poor concentration, anxiety,suicidal ideas, confusion, loneliness, etc are all symptoms of grieve. The experience of bereavement is a painful one. There are phases of grief which is well recognized, SHOCK- when the reality of the loss has simply not sunk in. PROTEST- when you protests that the loss cannot be real, whilst at the same time being confronted with the evidence that it is. DISORGANIZATION-when the reality of the loss is only too real. REORGANIZATION-when you begins to rebuild your life. There's no time scale for this. People have reported that through the process of adjusting to a loss, they have, in some ways, grown and become a stronger person. TAKE CARE.
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« Last Edit: November 21, 2009, 06:46:43 pm by kahikei »
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ashwini
Newbie
Posts: 24
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hi stracy
i know the loss you cannot replace but i feel you should kill the feeling of being sad and engage yourself with the activities like being with friend or plaesureful act . this will take your mind of a bit. you cannot possible give up , remmember the more you mourn the more you pay in reards of health instead you can indulge yourself in some socal service act like voluntering for patient in hospital
i promise you , you will do just fine
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andyong
Newbie
Posts: 6
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Hi Tracey,
I'm new here too and I'm so sorry to read your story and can only imagine the pain and suffering you have gone through. As some of the others have mentioned you need to think of some positives out of each trial and situation placed before you. I am also Christian and there is some truth in things happening for a purpose. Due to what happened to your husband I'm sure you will push harder to make sure your son gets the correct diagnosis and treatment. I'm not sure where you are in the UK, but there are some great hospitals in London to diagnose and treat cardiomyopathys (I was diagnosed in Hammersmith, and have been referred to a specialist at St Mary's in Paddington for continued treatment). I have only just turned 31, have led a fit and healthy life, don't drink much, don't smoke, don't take drugs, and not only that I have always tried to live a good caring life to everyone I come across and I was diagnosed last december as having HCM. My girlfriend keeps saying it's so unfair as I don't deserve it, and I have to give up most of my passions such as Kung Fu training, football, and tennis. However being christian has helped me accept my predicament as I guess god wants me to follow a different path, perhaps to focus on some other activities I am yet to discover.
Be strong and helping your son will help you find focus, which will allow you to recover your strength again. Life goes on and you will both be fine.
Andy
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dave18
Jr. Member
Posts: 80
great guy, warm,friendly, inteligent, chatty
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hi i'm dave, im new sorry for your loss, i hope you are going okish now
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